Over 13,000 Australians live with NF. Beyond the challenges faced by the condition, families are forced to navigate a healthcare system that operates in silos, when Neurofibromatosis does not.

Heart Week is Australia’s national heart health awareness week held in May each year.

National Palliative Care Week aims to raise awareness about palliative care and its benefits, and advocate to ensure quality palliative care is available for all, when and where they need it.